FYI – Submitted by
Officer Sabrina Dudley Johnson
It is important to acknowledge an often-disabling condition
that afflicts many
public safety workers across our nation, Fibromyalgia pronounced FIE BRO MY AL
JUH and is referred to as FM. Some have
asked “Why is it important to discuss and
research this condition?” Dr Edward Yelin warned in his 1995 study, “Fibromyalgia
is a
significant health concern.” Many have scoffed, “FM is a wastebasket
diagnosis!” The
majority of people with FM have been ridiculed and accused of being malingers. There
are members who have reached out to the disability committee
in desperation, seeking
knowledge about a condition they have been diagnosed
with and can find self-help education
on, by themselves. Several members with FM have found
self-help education at various
Fibromyalgia association websites and seminars but have expressed the desire to
communicate with other police officers with Fibromyalgia because “civilians
don’t understand the issues specific to disabled police officers.”
The purpose of this article is to help those officers who have been diagnosed
with FM or who may have family members who have FM. It is important to discuss
here and build awareness of FM among police officers because of its prevalence
(5% of the population has FM) and a subset known as PTFM. There are CPD
members, Dupage County Deputy Sheriffs, Federal LEOs and members of other
jurisdictions diagnosed with FM.
Fibromyalgia is a clinically diagnosed disorder, which is poorly understood and
difficult to treat. Fibromyalgia is recognized by the American College of
Rheumatology, the World Health Organization, The National Institutes of Health,
The Centers for Disease Control, The Social Security Administration, The
Illinois Industrial Commission, and the American Medical Association as a
valid medical diagnosis and cause of disability.
Fibromyalgia is a chronic condition for which there is no cure. Major symptoms
of FM include but are not limited to pain, fatigue, cognitive dysfunction,
weakness, irritable bowel/bladder, neuropathy, and allodynia. Fibromyalgia is
a musculoskeletal syndrome resulting from a dysfunction of the Central Nervous
System. Most people with Fibromyalgia suffer from a sleep dysfunction. They
do not achieve stage 4, Delta Wave, Non-REM Sleep. There are a plethora of
conditions associated with Fibromyalgia (too many to mention here). Despite
the multitude of symptoms and associated conditions, people with Fibromyalgia
look healthy. In fact, even those of us who are most severely disabled
can “pass” for healthy.
Even though FM is not new, diagnostic criteria was not established by the ACR
until 1990. Fibromyalgia is not rare, afflicting an estimated 10-12 million
Americans. Fibromyalgia is six (6) times more prevalent and disabling than
the total persons combined who have muscular dystrophy, cystic fibrosis,
leukemia and multiple sclerosis; and four (4) times more prevalent and
disabling than Rheumatoid Arthritis. Men and children are diagnosed with FM,
but women make up 75-90% of diagnosed patients. Researchers at DePaul
University and the University of Illinois believe that “this feminization of
the condition has helped to undermine [its] political and social value.”
NOTE:
Even though FM is classified as Arthritis, it is not a true form of Arthritis.
In fact, Dr. Mohammad Yunus of the University of Illinois in Urbana has been
studying the Central Nervous System’s connection to Fibromyalgia. Dr. Daniel
Claw of the University of Michigan is currently conducting Brain Wave Mapping
of people with Fibromyalgia, a scientific method of illustration of the pain
and central nervous system dysfunction. Fibromyalgia was a key topic at the
Janet G. Travell, MD Continuing Medical Education Series “Focus On Pain 2003”
in Orlando, Fl and the 22 Annual Meeting and Continuing Medical Education
Conference of the American Pain Society here in Chicago, Illinois. Speakers
related that contrary to popular belief, there are medically objective tests
that can be preformed to assist with the diagnosis of FM. Functional MRIs, Pet
Scans, and Brain Wave Mapping show the Central Sensitization of FM. However,
these tests are extremely expensive and insurance companies do not want to
cover them.
Research has also revealed (for the purpose of determining treatment options)
that there are various categories of Fibromyalgia. These are Idiopathic,
Primary, Secondary,
Post-Traumatic (injury related), Reactive, Juvenile, and
Elderly Onset (Early Elderly Onset and Late Elderly Onset).
For further self-help and support information concerning this mysterious
condition, visit the following ten websites:
www.fmaware.org
www.my.webmd.com (keyword Fibromyalgia)
www.immunesupport.com
www.fmnetnews.com
www.rheumatology.org/research/classification/fibro.htm
www.muhealth.org/~fibro/
www.fmpartnership.org/Whiplash.htm
www.sover.net/~devstar/
www.painhelp.com/fibromyalgia.htm
www.fibrocop.org